How To Reach Me

Several people (Brooke from OH, Laura from NY) left comments on the Guestbook that used to be here but there was no contact information. I'd love to be in touch so please leave a comment. I moderate all comments so you can put contact info directly into the comment if you'd like and I won't publish it, I'll just get in touch with you.

2-Year Post-Surgery Update

(John plays hide-and-seek in the lobby of the Cleveland Clinic at his 2-year post-surgery followup)

It has been nearly two years since John's resective surgery at the Cleveland Clinic. He has been seizure free since the surgery and is now medication free. He learned to walk in March and is talking well. He still has some special needs and lots of therapy but he is doing better every day. We are so grateful to the doctors at the Cleveland Clinic who gave him this new life.

1-year Post-Surgery Update

Last week, we returned to the Cleveland Clinic for John's one-year evaluation post-surgery. After a whole year with no seizures and a perfectly normal EEG, Dr. Kotagal officially declared John seizure free and gave us the go-ahead to slowly take him off of Phenobarbital and replace it with another, less developmentally harmful anti-epileptic drug. John has been developing so well since the surgery even while he has been on Phenobarbital, I can't wait to see how he does without it! Thank you once again, Cleveland Clinic, for giving our child a wonderful new life!

Welcome!

(John with Dr. Bingaman of the Cleveland Clinic, at 6 months seizure free)



Please click on the page of your choice from the column on the left. I hope that the information, thoughts, and resources here will help you in your journey with pediatric epilepsy and related conditions. Please leave comments and suggestions in the guestbook at the right.